New year still broken… but getting crafty.

It is now 2019 and there is nothing new about my brokenness…..well that isn’t completely true.

Today I scheduled the removal of my spinal cord stimulator (aka SCS). My SCS was implanted in September 2014, but unfortunately sometime 3 or 4 months after 1 of the leads moved and using it became UNBEARABLE so haven’t used it since January 2015. It is causing me discomfort and so it is time me and me bionic parts must be separated. The thought of not having the issues I am having and being able to go through a metal detector or have an MRI (not that any are planned, but you never know when 1 may be needed) is really exciting, BUT the whole thought of being put to sleep – even ‘twilight sedation’ – and having wires yanked out of my spinal canal is scary as hell! I was caught so off guard when they called and said “How about 2 weeks from yesterday? ” I didn’t remember to ask my questions so all evening I have been making my list of questions to call and ask tomorrow.

As far as the rest of the brokenness it is all pretty much the same. I did have a lovely 5 day hospital stay in July. They discovered my liver ducts are dilated, but not any more than they were 5 years ago as best they could tell comparing an MRI to an ultrasound. The nurses on the oncology floor at Christ Hospital in Cincinnati, OH were awesome as always, but my Panhematin was the talk of the unit as only a couple of them remembered ‘a few years earlier there was a patient who they gave it to’ which made me chuckle and sheepishly say `that was me`.

Now the fun stuff – the craftiness!! I have been having fun making shirts for family and friends. I made our nieces shirts for Christmas along with some onesies for a friend and decided I will make an effort to craft at least once a week. Hopefully that will become several times a week. Here are some of my creations:

What is a Chronically Broken Hunney Bee?

Simple answer – lots of things! Hunney Bee is a sweet title my amazingly loving, patient, & understanding husband gave me on our wedding day as our last name starts with ‘B’. The unique spelling is because I am FAR FROM NORMAL in lots of ways which also leads to the chronically broken part of the title as well. You see, I live with invisible chronic debilitating illnesses – AIP, CHRONIC PAIN (similar to FIBROMYALGIA & CRPS), CHRONIC FATIGUE, CHRONIC NAUSEA & TACHYCARDIA. So, basically my body is not working as promised making life exciting at times for all the wrong reasons and other times, the most exciting event is making it 20 feet to the bathroom by myself. Many would refer to me as a “spoonie” – if you have never heard of ‘The Spoon Theory’ please google it especially if you have a chronically ill person in your life.

This blog is about sharing my life (good, bad, ugly, boring, and unique) with others who may be living with a unpredictable spoon count, love crafts, or just want to have a laugh from time to time.

Thank you for taking the time to read a post or 2. I love meeting – even through a keyboard – and chatting so leave a comment!